Give Lavi the Gift of “La Vie” (By Give2gether)
Take a minute to leave your comments after watching this short video about parkinson’s disease prognosis.
This is not a request for help, but an invitation an invitation to join us on a journey that begins with saving the life of a 10-month-old child. Visit www.give2lavi.org. Our journey will take us towards a treatment that can give life to many children affected by currently untreatable brain diseases. Reading our story costs nothing but a minute of your time. Eight months ago we, Yulia and Gili Ben-Moshe, were confronted with every parents nightmare learning that their child has a fatal disease. Eight months ago our third child, Lavi, was diagnosed with a fatal disease called Canavan Disease. The prognosis of children diagnosed with this rare disease is a tragically short life in a vegetative state. We began a fundraising campaign that culminated in a special report on Israel’s most popular TV channel: Uvda. During this report the audience was prompted to donate via SMS, we were deeply moved by the very many hearts that Lavi touched during this TV report, within 48 hours we were indeed able to raise a sufficient amount of funds to continue the Lavi’s current therapy and clinical care in the US. Sadly, the disease is as relentless as ruthless and scientists have already collected evidence showing that the pharmacologic treatment is only temporary and not sufficient to stop the progression of the disease. More than ever we know that time is of the essence because the flawed machinery encoded in the genetic mutations of Canavan patients will compromise and kill brain cells …
Tagged with: gift • Give • give2gether • Lavi
Filed under: Parkinsons
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Gili spoke at my synagogue today. I was almost in tears.
he is gorgeous!!! i pray he’ll be well soon. my love to this amazing family.
hi to u all; lavi needs all the help and hope
i wish him all the best
I hope you succeed! don’t lose hope, Yulia and Gili!
Be strong, and good luck!
I keep my fingers crossed for you!
Amazing and brave family the movie very touching I will forward this to all my contacts
Amazing and brave family the movie very touching I will forward this to all my contacts
I just saw this video. I wish you both the best with your baby. My goodness, Lavi is the most beautiful baby I have ever seen. So beautiful. I am not just saying this because all of the odds that he has faced. But he truly is the most beautiful baby I have ever seen. Please take care and know that you are in many peoples thoughts and prayers.
How is Lavi doing? I saw the movie at Uvda back in Jan …any progress? Wish you guys all the best
Yulia – we look forward to get active as part of your campaign
Very touching.
I hope you succeed!